I live in Colorado in the US and we have legal weed here. I use CBD, CBG, and THC and it helps but I’m no good when I’m baked during the day. I use it ay night. That’s amazing you are still here and beat the odds, keep that going!

I can only imagine how that woman felt going through that. Luckily I went through school for software engineering and I got a remote job. If I wasn’t able to work from home I wouldn’t be able to work. So little can make my pain so bad it’s debilitating.

I’m very glad you’re feeling better than ever, that’s amazing to hear. I hope one day I’m able to say that. Do you get side effects from prednisone? Every medical person has told me that going on it long term has many side effects but sometimes you just have to do it. I really hope the immunoglobulin will be a correct fit for me.

Right now I’m on 100mg Lyrica 3 times daily, celecoxib 200mg, 12 mg tizanidine, have Cyclobenzaprine also, and then 20mg hydro daily. I just started the hydro a week ago. I also take 100mg tramadol xr. I was on 100mg tram xr and 200mg ir throughout the day and it did nothing. The hydro already does so much more but it’s still not enough.

Having this chronic pain has really made me see life from a different perspective. I moved from Seattle washing where I grew up to denver Colorado just last July because I love hiking, snowboarding, and biking. But just soon after I moved it started and slowly progressed and then in January is when it got bad so now I can’t even do the things I moved here for. It really sucks. At least I’m happier here in general.

I’m sorry it took 3 years for you to get diagnosed. I really hope something can be figured out in the next year. It just sucks so bad not being able to be on the medication like prednisone that really helps me because it can affect results of tests. I don’t even know if I care about a diagnoses at this point. I just want to either be on correct pain medication or something that allows me to do stuff

Nope. Completely different symptoms than that

Thanks I appreciate it. I got a blood test done and it didn’t show any muscle inflammation so now I just set up a spinal tap for next Tuesday. He thinks it’s some polyneuropathy thing but he says I’m the weirdest case he’s ever experienced. Told me my reflexes were different from when I saw him a month ago. It just all makes no sense. My emg on my legs shows my tibial nerve on both legs were messed up and then all my muscles were firing wrong. ¯_(ツ)_/¯ On painkillers (hydro), Lyrica, and muscle relaxers and yet I’m still in pain. Have some control issues with my legs and just a lot of stuff. I’m sorry you’re going through all this. You can also reach out to me, it is quite a lonely journey especially when you’re 25 and no one can relate or understand

Glad you got diagnosed! My neurologist has already told me the expect a non curable situation sadly so I’ve accepted that

Due to the way I reacted to prednisone months back he talked to me today about potential lifelong immunoglobulin IVs that should help me a lot instead of destroying my immune system with steroids

Glad you got diagnosed! My neurologist has already told me the expect a non curable situation sadly so I’ve accepted that

Glad you got diagnosed! My neurologist has already told me the expect a non curable situation sadly so I’ve accepted that

Getting my year long undiagnosed chronic pain issues to be diagnosed. My neurologist has been proactive this past month since I saw him so I’m hoping we can get somewhere. Got proof, just no diagnoses

Interstellar and both the spiderverse movies

I’m adding you to my nut list

Make Bezos, Musk, Zuck, Spez, and @Luckyy@lemmy.world nut whenever i clap

I never said I was worried. It’s just the general idea when actual companies usually have a data deletion policy in place. Having a data retention policy in place is usually a good look

Look at my other comment with the link. It’s saying that even if you delete your account the only thing that happens is that you can’t access it anymore but every comment and data is still in the database

What about privacy? Will the devs only get your info if you are a part of Lemmy.ml?

I found the link in my history https://raddle.me/f/lobby/155371/warning-lemmy-doesn-t-care-about-your-privacy-everything-is

I’ve enjoyed it a lot. There are some stuff that could fit better on screen, like when you look at the communities you’re subscribed to. Also, it would be nice to show your subscribed communities in alphabetical order.

Otherwise, I really enjoy the layout. It’s so simple

Lemmy! Lol